Dealing with Alzheimer's and Dementia in Family Members

godofwine

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To Grandma - By Godofwine (650 Words)

Bertha Jonas sat in her wheelchair running her tongue across what was left of her teeth. It always gave her a strange sensation remembering back to when she had a full set, but this was all she had left. She raised her hands, which shook mightily from the palsy, and then folded them back in her lap.

Her hands and body didn’t shake in her dreams.

If not for the tremors, she’d enjoy these fleeting moments of lucidity, but they were growing shorter and much less frequent. The birthday card with her picture on her nightstand reminded her just how long she had been walking on this plane - 101 years - which was too long by at least fifteen years by her estimation, maybe longer. It was difficult to tell, as many of the days ran together, like trying to count the windows on a moving train.

But she also longed for the dreams.

The dreams allowed her the dichotomy of lucidity and freedom, and she grew to enjoy them both. Those extended moments where she wandered from one fantastic dream to the next. In them, she got to play again, and wasn’t cooped up in a room by herself or in a gathering of strangers; she was in full control of her body and her bodily functions. Even the scary dreams weren’t so bad once she got used to them. After a while, she realized she wasn’t in any more danger than on a rollercoaster or the nightmares she endured as a child.

‘All of the fear and none of the danger,’ she used to tell her kids and grandkids.

In the dreams, she was almost never alone. Her brother Walter and sister Sarah kept her company, and the two of them together were so funny she’d be in tears most of the time. At the dawn of every dream, she would rush to the mirror because it was never the same. Sometimes she’d have wrinkles, sometimes not, but each time was a welcome surprise regardless how she looked.

Devastation occurred when the dream abruptly ended, pouring like water through her fingers. Regardless of how desperately tried to hold onto the image, it slipped through her grasp. The feeling of being yanked backward as the world dissolved before her was near catastrophic the first time, though eventually the event just grew tiring and drained her strength.

In the aftermath, she was shocked at how long she’d been gone. An hour at first, then a day, and then weeks.

“Why am I still here?” Bertha weakly asked when her daughter Shirley last visited.

Shirley had no words of comfort. She simply hugged her and said, “I don’t know, mama.”

But ‘I don’t know’ wasn’t the comfort she was looking for. She loved the dreams, but the come-down from dream to her reality was too much to handle anymore.

She just wanted to go home.

“Bertha, are you in there?”

“Where else would I be?” Bertha thought.

But she didn’t just think the words – she felt her lips move with every word as she said them and her voice was strong.

Her eyes widened, as the person rounding the corner wasn’t her nurse, but her sister Sarah, with her brother Walter following closely behind.

“I…I,” Bertha said, tears streaming down her face. She raised a hand to her mouth, then stared at it as if it didn’t belong to her.

Her hand wasn’t shaking.

She lifted her other hand to see if it was real and her hand was as steady as it would have been 60 years before.

She looked around and the bed, the bedpan on the table – everything was still there. She wasn’t dreaming, but she was…normal again. She didn’t understand what was happening, but she couldn’t stop crying and smiling.

“Get up outta that chair, Baby Bertha. You’re coming with us,” her brother Walter said.

******

This may be a fictional account of my 101 year-old grandmothers last days, but some of what I included was real. She actually asked my mom, "Why am I still here?" and my mom did reply, "I don't know."

I have no idea what Dementia or Alzheimer's feelings are for the person going through it, so I constructed it to be like a dream of sorts. I image part of it is going to the parts of your life that you remember, that was her sister Sarah (my great aunt) and their brother Walter.

My grandmother has called me by my father's name since I've been grown because I look like him. It is tough on folks who have to watch people they love go through it. Luckily, I don't have any other experiences with it except with my grandma who had dementia.

The older we get, we're cursed to watch the ones around us pass on in various ways. What are your experiences with Alzheimers and Dementia?
 

305

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Bless up king. Got my step dad going thru it now. Worse part is his frustration bouts. He gets so angry that he cant remember something that it creates a safety issue. Will he hurt himself, my mom. Its a sad situation.
 

Helico-pterFunk

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Thank you for sharing, G'.



Have had a bit of experience with Alzheimers and dementia. Grandpa (dad's father) had a number of issues in his final years. Dementia, dysentery, colon cancer, broken hip, stroke, urinary tract infection, medication overdose & general complications, etc.


Some of grandma's friends battled Alzheimers in their final years.


Great uncle (dad's side of the family) battled dementia & pneumonia before passing last year in their mid-80s.


Close friend has been recovering from a stroke the past 2 years. Had to relearn how to speak. "Hello" and "How are you?" were the starting points and a complete struggle. They have former brain damage from carbon monoxide poisoning decades back on top of that. It has been a slow grind, but it's good to see them coming around. In better spirits ... able to socialize more ... speech has improved and probably to about 60 - 70% of where they were prior. They were hospitalized for 2 months post-stroke. Daily speech therapy back in 2016. Plenty of confusion still though ... often will need to check in a number of times ... needs reassurance & routine reminders with their daily activities. Paying bills, buying groceries, etc. They have a support worker - though they don't have enough access to them. All family's deceased or still overseas.
 

K. Hash

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My grandmother had Alzheimers. I was fairly young when she looked at me dead in my eyes and smiled and asked "Who are you?". I didn't understand and thought she was joking, so I chuckled and said "It's me. Your youngest grandson" and she just looked at me with a faint smile like "Ummm okay. If you say so"

My aunt is diagnosed with early stages of Dementia.

My co-worker's father just passed away on Monday. He had final stages of Alzheimer's (not sure what that exactly means. I told myself i'mma google it). My co-worker said his family found out that their dad hadn't eaten in a week. So, I figured he forgot what hunger felt like and just kept living in his own world.

A terrible thing to see/experience from a family member first hand.
 

Helico-pterFunk

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Dad's aunt (90yo) has been battling MS since the early-2000s or so. Dementia's starting to set in now (recent years). She was living on her own in Seattle ... and her younger sister had her relocate to a seniors' facility in Olympia a handful of years back. Really convenient as it was about 5 mins away by car. She has since relocated (past 2 years or so) to a more specialized care facility (still in Olympia) which is about 20 - 25 mins away. They don't see her as much, but fortunately she isn't isolated in Seattle like years back. That's when her health was really deteriorating ...
 
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vandamation

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Man.... My Grandpops used to str8 up walk out of his house at 4:00 am everyday... It got so bad that I had to move in just to keep him from leaving... Not to mention...HE WAS NOT A LOVING OR KIND MAN AT ALL... Truth be told... I DESPISED HIM... but... He wasn't well and I felt that I had to make sure he was ok....

I feel u bro.. I've been there.
 

godofwine

Supreme Porn Poster - Ret
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thank you for this

this hit me in my heart

he's alive but I still miss my dad
This shit is real. If your dad was a good one, though now his mind is gone, thank God you had a good one. Some of us were not so lucky. My dad was a piece of work. I'd give anything to have a dad I'd miss when he's gone.
 

Nochturnal

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My grandfather in my mother’s side had dementia. I had to look after him one summer. Hurt me to my soul watching a man who was so strong and independent, a man who literally built his house with his own two hands, deteriorate before my eyes. The last time I saw him in the nursing home, he grabbed my hand and begged me not to go. Shit hurts just thinking about that. A couple of years ago my grandmother on my fathers side was diagnosed with Alzheimer’s, she’s 91 now and has no clue who I am, she doesn’t even mistake me for my father anymore. Shits tough, I can’t imagine what she’s going through, this story hit me hard because it gave me a perspective about what she may be going through that never crossed my mind. I’ve talked to her on the phone and she has told me on multiple occasions that she wants to go home. I just don’t know what to tell her. Thank you for writing this.
 

playahaitian

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This shit is real. If your dad was a good one, though now his mind is gone, thank God you had a good one. Some of us were not so lucky. My dad was a piece of work. I'd give anything to have a dad I'd miss when he's gone.

Its complicated...

the saddest thing is we weren't really that close. But he was a good man in his way and a good provider.

and then when he really got sick he wouldn't trust ANYONE including his brothers my mom his buddies no one

except me.

And he called me the one thing he never really did when I was alive

his friend.

and when he told me that my "father" would be proud of the man I was now.

I fucking broke down.

still not over that to be honest
 
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Texas Catdaddy

the omnipotent one .....
Platinum Member
Saw a grandfather wither away, one of them strong ass cats that repaired and built everything ..... Got a Uncle that retired about five years ago, started forgetting shyt at work, now don't recognize me ..... My grandma just passed, she was 98, mind Sharp as a tack till the end .....
 

HotNixon36

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Yeah, it's rough, I have seen it with several family members.

I know a lady, her husband died almost 20 years ago of Alzheimers, she is 104, remembers everything and sharp.

 

34real

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My aunt to going through it now and I've watched a neighbor of mines suffer from it,she would call me over and hand me candy or whatever she had as if I was still a little boy playing in the front yard of my parents house.

Bless em all
 

dawilleyone

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BGOL Investor
Going through it with my mom. Parkinson symptoms and dementia. Medication helps stabilize her but she is totally dependent on on others. I saw her mother (my grandmother) go through it before her end and she refused to take meds so it was ugly to watch.

Very hard to communicate with her, every once in a while she'll come to life when we play some music or if she see's someone she hasn't seen in a while but most of the time she's not able to communicate.

The thing about it was it hit so fast. Literally over the course of 2 years she went from being completely independent to completely dependent.
 

3rd__Optic

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My Great Grand Mother, her Son (My Uncle), My Grand Mother, My Mother, and My Father (experiencing memory issues) all had dementia on some levels. Genetics and diet is what I think accelerates it. All have died except my Father.
 
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dik cashmere

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Steppops going through it now. Watched my best friends grandmothers both pass away from it. There’s a direct correlation to Alzheimer’s and diabetes. Alzheimer’s is a tricky disease due to the fact that it shrivels the brain. As the brain gets smaller it is replaced by fluid. The fluid puts pressure on parts of the brain that control bodily functions. The ability to walk, talk and eventually chew and swallow. The only good thing is they don’t suffer for long because they don’t remember they were in pain.
 

COINTELPRO

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As greater access to healthcare and medical technology advances for simpler diseases that kill like heart attacks. These complex disorders that require round the clock care will increase.
 

playahaitian

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Steppops going through it now. Watched my best friends grandmothers both pass away from it. There’s a direct correlation to Alzheimer’s and diabetes. Alzheimer’s is a tricky disease due to the fact that it shrivels the brain. As the brain gets smaller it is replaced by fluid. The fluid puts pressure on parts of the brain that control bodily functions. The ability to walk, talk and eventually chew and swallow. The only good thing is they don’t suffer for long because they don’t remember they were in pain.

^^^^^^^^^^^^^^

thank you for high lighting this

ESPECIALLY as Black men and of Caribbean and African descent we are the most prone to this
 

dik cashmere

Freaky Tah gettin high that's my brother
BGOL Investor
^^^^^^^^^^^^^^

thank you for high lighting this

ESPECIALLY as Black men and of Caribbean and African descent we are the most prone to this
Fam I started doing research on my own to see what the common denominator was seeing as how quite a few people in my neighborhood had it. Come to find out they all had different levels of diabetes. First comes the dementia, and depending on how quick you catch that determines how long you have until Alzheimer’s kicks in
 

playahaitian

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Fam I started doing research on my own to see what the common denominator was seeing as how quite a few people in my neighborhood had it. Come to find out they all had different levels of diabetes. First comes the dementia, and depending on how quick you catch that determines how long you have until Alzheimer’s kicks in

For my dad it was back to back.
 

yaBoi

X-pert Professional
Platinum Member
my dad was in perfect health. ......for him i think is was smoking...although he didn't show any symptoms till a year after he stopped smoking.. crazy

Alzheimer's sucks.. in my opinion is the absolute worst disease on the planet...

and that's the hard part... they are still right there.. but you miss them because they are already gone
 

Helico-pterFunk

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BGOL Legend
Visited some relatives just under 2 weeks ago. The 91yo with MS was doing fairly well. Repeated herself in conversation a fair number of times, but was otherwise clear & coherent. 84yo great uncle with early stages of Alzheimers was similar in conversation to her ^, though needing reassurance and clarification a number of times when getting fixated on certain parts of conversation. Fortunately his wife is in very good health (turning 80 soon) & really looks out for him. Keeps things in order ... facilitates his day-2-day scheduling with appts, meds, etc. She's very with it and competent, and hopefully she maintains good health for several years to come. Both for herself, and as her husband's health unfortunately declines further.
 

Mo-Better

The R&B Master
OG Investor
Having gone through this with my dad and an aunt, I can say you have no clue as to what's coming your way.

This is not something one person especially a working person can handle by themselves, it takes a family effort. Good Luck to anyone dealing with this.
 

Helico-pterFunk

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How Deep Sleep May Help The Brain Clear Alzheimer's Toxins



October 31, 20193:21 PM ET

Heard on
All Things Considered



Jon Hamilton




The brain waves generated during deep sleep appear to trigger a cleaning system in the brain that protects it against Alzheimer's and other neurodegenerative diseases.

Electrical signals known as slow waves appear just before a pulse of fluid washes through the brain, presumably removing toxins associated with Alzheimer's, researchers reported Thursday in the journal Science.

The finding could help explain a puzzling link between sleep and Alzheimer's, says Laura Lewis, an author of the study and an assistant professor in the department of biomedical engineering at Boston University.

The Brain During Sleep
During deep sleep, waves of cerebrospinal fluid (blue) coincide with temporary decreases in blood flow (red). Less blood in the brain means more room for the fluid to carry away toxins, including those associated with Alzheimer's disease.



Credit: Fultz et al., 2019

"Some disruption to the way sleep is working could potentially be contributing to the decline in brain health," Lewis says.

The finding also suggests that people might be able to reduce their risk of Alzheimer's by ensuring that they get high-quality sleep, says William Jagust, a professor of public health and neuroscience at the University of California, Berkeley, who was not involved in the study.

Scientists are already testing other lifestyle changes, like diet and exercise changes, to protect brain health. And sleep should be "high on the list" of measures worth trying, he says.

The study comes after decades of questions about the link between sleep and Alzheimer's.

Studies show that people with Alzheimer's often have sleep problems. And there's growing evidence that people with sleep problems are more vulnerable to Alzheimer's.




Shots - Health News
Lack Of Deep Sleep May Set The Stage For Alzheimer's


But there has never been a good explanation for this connection.

"It's been known for a long time that sleep is really important for brain health," Lewis says, "but why it is was more mysterious."

Lewis and a team of researchers wanted to solve the mystery.

So they found a way to use cutting-edge MRI techniques and other technologies to watch what was going on in the brains of 11 sleeping people.

One of the things they monitored was cerebrospinal fluid, or CSF, the liquid that flows through the brain and spinal cord.

"And that's when we discovered that during sleep, there are these really large, slow waves occurring maybe once every 20 seconds of CSF washing into the brain," Lewis says.

These waves were a bit like the oscillations of a very slow washing machine.

Earlier studies of animals had found that the flow of CSF increases during sleep and helps carry away waste products, including the toxins associated with Alzheimer's.

But Lewis' team was able to see this process occur in the brains of people — in real time. And that led to another discovery.

"Before each wave of fluid, we would actually see a wave of electrical activity in the neurons," Lewis says. "This electrical wave always happens first, and the CSF wave always seems to follow seconds later."

The finding suggests that the electrical wave was triggering each wash cycle.

And the brain wave in question was a very familiar one called a slow wave. Slow waves appear when a person enters the state known as deep sleep, or non-rapid eye movement sleep.

And they play a role in both memory and brain disease, Lewis says.

"It's already known that people with Alzheimer's disease have less of these electrophysiological slow waves, so they have smaller and fewer slow waves," she says.

The new study suggests that this reduction in slow waves is reducing wash cycles in the brain, which would limit the brain's ability to clear out the toxins associated with Alzheimer's.

"It would make sense that if there's large waves of fluid, of CSF, that that might in turn cause mixing and dispersion with other fluids in the brain and help with this waste removal process," Lewis says.

Lewis' team made one more discovery about sleeping brains. As the flow of cerebrospinal fluid increases, blood flow decreases.

Less blood in the brain means more room for CSF to carry away waste.

The study's findings fit nicely with other research on sleep and Alzheimer's disease, Jagust says.

He was part of a team that studied the relationship between slow-wave sleep and a toxin called beta-amyloid, which accumulates in the brains of people with Alzheimer's.

They found something a bit disturbing.

"It's a vicious cycle where amyloid decreases sleep, and decreased sleep results in more amyloid," Jagust says.

The new study results suggest that the increase in amyloid could be the result of less waste removal in the brain, he says.

But Alzheimer's, like heart disease, is likely to have more than one cause, Jagust says.

"There are a bunch of things that are probably contributing to people's likelihood [of] getting Alzheimer's," he says, "and I think sleep is going to turn out to be one of them."
 

Helico-pterFunk

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