Hello governor,
Recently a good friend of mine from New York asked me to petition you about this bill. He has a daughter who is suffering from sickle cell anemia.
I'm sure that at some point you have suffered from a Charly horse or spontaneous muscle cramp. Now imagine that this cramp happens frequently, without warning, and for a prolonged length of time. Imagine that you are unable to move your affected limbs or uncurl your affected fingers because of sheer agonizing pain. Imagine knowing that these cramps could reach your brain and kill you far before your time.
My wife had sickle cell. I sat by her side at her nearly bimonthly hospital visits to get blood transfusions. I took her to refill her prescriptions for the powerful opiates she needed just to function. I saw her condition deteriorate until one day I woke to find her dead beside me at the age of 29. Worst of all, our surviving daughter has a sickle cell trait which could eventually cause her to go through a similar hell.
I'm not asking you to support this bill to give your people a normal life or ease their pain. I want you to fund it so that we can rid our country of this plague once and for all by finding a cure.
If you agree to do this I will support you in any way I can. Phoning potential voters, participating in fundraisers, whatever you need. You have my number and email so please, reach out to me any time.
Thank you for hearing my concerns.
